Savannah Fulkerson has a rare genetic condition that causes her skin to burn when exposed to the sun. Some would say she is allergic to sun or allergic to sunlight.

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Around the time Savannah Fulkerson turned 4, she became unable to spend any length of time outdoors. “We’d be outside about 20 minutes or so … she’d say, ‘I burn!’” recalled Savannah’s mother Andrea Fulkerson. Fulkerson remembers Savannah in so much pain she had “uncontrollable screaming like she got hit by a car.”

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